No Place Like Home

We’re going home tomorrow!

Theo’s diagnosis or prognosis hasn’t changed but we’ve been talking with our team here over the last week about our options and determining what’s best for Theodore. There are no medical interventions or treatments necessary for Theo at this point; our focus has been and will continue to be the relief of his pain and ensuring he is as comfortable as possible. And we believe that the best decision for our family is a return to the comforts of home.

We’ve made the difficult decision not to return immediately to Timmins but to stay here temporarily with family as we closely monitor Theo’s status. Theo will require the support of his palliative team and therapists at McMaster and will need to be followed by specialists for the monitoring of his limbs. There is also a serene and highly recommended hospice house not far from here.

As you can imagine, this has not been an easy decision. Our jobs, our house, our friends…our entire lives…are back home in Timmins and we were really looking forward to returning home as soon as possible. Since Theo’s sudden illness, life as we know it has been flipped upside down and we’re still waiting for it to right itself again. I achingly miss the normalcy of our past but we’re learning to adjust to our new normal and Theo receiving the care he needs is first and foremost for our family at this time.

Mark and I have already begun our nursing crash course – learning how to suction, checking the placement of Theo’s NG tube and operating the feeding pump, changing his dressings and mixing and administering the many medications that he receives.

We’re nervous about this transition but after two months, we’re ready to say farewell to the hospital. Theo will still require extensive nursing care and therapy at the house but we’re excited about what this new normal means for us: springtime walks with Theo and Ruby, sleeping in a bed and eating home cooked meals, painting eggs with his cousins, the three of us sitting at the table enjoying Easter dinner with our families.

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8 comments

  1. Horray! I am happy you guys will be able to break free from the hospital! I am optimistic that with the intelligence both you and Mark posses, you will be able to manage Theodore very well, especially considering you have been present the past 2 months witnessing all the interventions (have faith in yourselves!) You must look at this as in incredible milestone, Theodore and Ruby will be reunited once again as best pals. 🙂 Please call me should u need anything at all. Thanks again for your updates!!!

  2. I am so happy for all of you! It must be hard decision to stay there, but it’s the best decision for theodore!

  3. My heart grows a little more, each time I read one of your posts. Your strength and outlook, amaze me. I now understand where Theo gets his strength from. You are in my thoughts and prayers everyday.

  4. You and Mark will make the best nurses for Theo – you’ve had some good mentors if I do say so myself! Congratulations on (finally) getting to leave the hospital, it will be good to get into a better routine! Love and miss you all!!

  5. This is wonderful news!!! We will continue to pray for all of you as you settle in “at home”. We will also pray for Theo’s continued recovery – we’re so glad that he’s proving everyone wrong. Sending much love your way. You are a gifted writer, Ashley – thank you so much for sharing your journey with us – you are touching many lives.

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