Stars shine brightest on the darkest nights.
Theo’s breathing is still struggled. When he’s awake, we spend his days repositioning him to help open his airways and massaging his jaw and facial muscles to optimize his tone and encourage his swallowing reflex. Over the last week, he has started vomiting frequently, which our doctors suspect is either a side effect of a respiratory infection or an intolerance to his feeds but every time it happens, we’re on high alert for a potential aspiration event. We continue to live each day dichotomously: joyfully celebrating that Theo has surpassed expectations and fearfully accepting that it could also be his last.
There have been days over this last week where I am unjustifiably angry. Angry that my son has been deprived of a normal life. Angry that when he cries out in pain there’s little we can do to help him. Angry that the unknown woman I saw on the sidewalk laughing continues to go about her life as though nothing has changed. Angry that the sun continues to rise for the rest of the world when our days are still dark.
But on the darkest of days, I look up and I see the stars – the many Teddies above Theo’s hospital bed. These bears are symbols of hope, encouragement and strength; messages of love and support, heartfelt prayers and best wishes from your homes and hearts to ours.
You have infused our life with hope and love. From every corner of our hearts, thank you. Thank you for sending these stars to fill our dark sky.