The Unknown

I’m desperately trying to live in the moment – to dwell in the life currently unfolding in front of me, and not the fear of what‘s to come.

Theo’s breathing has recently become more laboured and we know that this could be a sign of what’s to come. The quantity of medication that is necessary for pain management of his limbs could eventually slow or stop his breathing. Theo also has some difficulty swallowing (an outcome of his current neurologic function) so he is at risk of aspiration pneumonia from his secretions.  Right now, he is very susceptible to the average childhood cold – a common virus could have serious (even fatal) implications for him.

It’s days like these that I feel like I’m walking a tightrope of hope above a pit of adversity and praying for balance.

One day at a time.


  1. Never stop baby boy! You have overcome way too much to give up now! You can do it… And to mommy and daddy, stay strong, don’t give up the hope, give him the strength he needs!

  2. You have some hard core believers working with prayer as of last night my sister is on board and she is getting her army friends to pray these guys are deep ,enough talk I’m going to pray some more right now ,i
    was up at 4am this morning praying for all of you will pray for his breathing . God Bless! keep the faith!

    1. Breath everyone ! take all your fears out of your minds, think ONLY good things for Theodore, take the fear out replace it with faith ,go full out NO negative thoughts , have faith, really believe DO NOT FEAR .Fear comes from the evil one that takes away faith! For miracles we need faith, trust God ! Hope is not faith ! we need to believe not hope.”Theodore in JESUS name be healed”.

  3. Dear Mark & Ashley, I’m Robin’s sister, the paramedic that prayed with you in the ambulance. Just wanted to let you know that Robin and I just prayed for Theo and for both of you. I have an army of people that are praying for your wonderful family. I sent Theo’s story to Ottawa’s Companions of the cross which is a community of Roman Catholic Priests and also my group of Cursillo brothers and sisters in Christ. They are Christ filled believers. Matthew 18:20 “For where there are two, three or more gathered in my name, in the midst of them I shall be. Keep the faith. Believe in Miracles. So many of them have already happened. Don’t forget that and Don’t ever give up. It’s during the difficult times that we are closest to the Lord. He is with you. Praise be to God!

  4. We are continuing to pray for Theo, and for you, Ashlee, and Mark. Your blog is very moving and so well written. We are amazed by Theo’s story, and will continue to pray for all of you. Thank you for sharing your journey. We send our love and prayers. xxxxx

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